Collecting and disaggregating data on LGBTI people’s health is a persistent challenge for Member States, as national statistical agencies, health ministries, and other government bodies do not know how to respectfully and responsively ask for these data. As illuminated in our recent publication, Agenda 2030 for LGBTI Health and Well-Being, Member States must collaborate with community-based and LGBTI-led organizations to gather these data and commit to monitoring the health and well-being of LGBTI people.
During the SDG 3 discussion on Wednesday, Indonesia, Sudan, the Indigenous People’s Major Group, and others mentioned the lack of comprehensive data as a key barrier to health in development. SOGIESC disaggregated data must be collected through routine health surveillance data in: HIV incidence; mental health; alcohol and drug use; reproductive health care; smoking; exercise and obesity. The scope and strength of available data often determines the financing that initiatives can attract. Nowhere is that truer than in the health field, where evidence-based health policy is meant to be based on epidemiological and clinical data. International donors and governments use the lack of data on LGBTI populations to justify underinvestment.